The Hemophilia Foundation presented the agenda of the various actions and objectives of the commemoration of World Hemophilia Day. “For this year we consider it vital that the different actors that have a direct or indirect relationship with hemophilia have a meeting point and space to converge in order to achieve improvements in the comprehensive treatment of this disease throughout the country,” they explained.
The World Federation of Hemophilia, has set itself the following slogan for this day: “Access for all: Partnerships. Public policies. Progress. Involve their government, integrate hereditary bleeding disorders into national public policies” It is then that under this framework they presented this proposal.
“We have a schedule of activities for the previous weeks, both virtual and face-to-face, which will be coordinated with a social media and media campaign to give visibility to hemophilia and place it on the health policy agenda,” they said.
Hemophilia is a condition of the blood that affects the clotting process and that, in about 70% of cases, is inherited through the X chromosome of women, which makes them carriers of the gene in their family. Although mostly men suffer from it, women carriers can also have symptoms.
Agenda
Friday, April 1: Start in the networks of the campaign on the month of hemophilia. It will be valid throughout April focusing on various axes and themes. Campaign: #DiaMundialDeLaHemofilia #FundacionDeLaHemofilia
This campaign will be carried out by an advertising and marketing agency with the aim of installing different aspects of hemophilia in stages.
Sunday, April 17: Commemoration of World Hemophilia Day
The GCBA and different provinces will be asked to light public buildings red. The National Executive Branch and the National Legislative Branch shall be requested to illuminate the respective buildings in red. There will be discussions with the Ministry of Health to obtain support for the campaign.
Photos sent by the entire community with #DiaMundialDeLaHemofilia and #FundaciónDeLaHemofilia dressed in red or in a red outfit will be posted on the networks. This includes celebrities who join the initiative.
It will be carried out within the framework of the network campaign, that certain clubs from all over the country that play at home the match for the 10th date of the Professional Football League, that form for the photo with a flag of World Hemophilia Day, and placing the website of the FH. (to be confirmed by the various clubs)
Tuesday, April 19 - 1 pm: Event for World Hemophilia Day. Place: Soler 3485, Hemophilia Foundation.
-Presentation of the “HArGentina” Project National Registry Campaign of PCh. Authorities from the Ministry of Health, Superintendency of Health Services, industry representatives, families, patients and staff of the Hemophilia Foundation will be invited to present the implementation of the World Federation of Hemophilia funded Project. An exchange space will be organized among the attendees in order to provide more information and strengthen ties and share a lunch for that occasion.
In addition, there will be:
-The 2022 edition of the magazine CONOCERNOS, of the FH, in which the current situation of hemophilia in our country will be represented in different articles:
scientific, social, multidisciplinary articles, interviews, National Care Network, etc.
-Virtual Educational Campus of the FH, which will consist of an online Platform to be used as an asynchronous space for the entire educational offer of the institution, complementing synchronous classes (virtual, face-to-face or hybrid).
Networks will be strengthened with #DiaMundialDeLaHemofilia and #ProyectoHargentina inviting celebrities, athletes and politicians to leave their message for this day.
KEEP READING:
Últimas Noticias
Debanhi Escobar: they secured the motel where she was found lifeless in a cistern
Members of the Specialized Prosecutor's Office in Nuevo León secured the Nueva Castilla Motel as part of the investigations into the case
The oldest person in the world died at the age of 119
Kane Tanaka lived in Japan. She was born six months earlier than George Orwell, the same year that the Wright brothers first flew, and Marie Curie became the first woman to win a Nobel Prize
Macabre find in CDMX: they left a body bagged and tied in a taxi
The body was left in the back seats of the car. It was covered with black bags and tied with industrial tape
The eagles of America will face Manchester City in a duel of legends. Here are the details
The top Mexican football champion will play a match with Pep Guardiola's squad in the Lone Star Cup
Why is it good to bring dogs out to know the world when they are puppies
A so-called protection against the spread of diseases threatens the integral development of dogs
